Join the 5km walk to save Kaya’s vision

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Kaya Barker (3) was born with a brainstem malformation, Pontine Tegmental Cap Dysplasia, a condition so rare there are fewer than 100 people with it globally.

This impacts every aspect of her life, including hearing, breathing, sleep, and mobility. Her vision is also impacted and, without nerve transplant surgery, she will no longer be able to see.

Kaya’s mother Andrea Barker grew up in Scottburgh where her family still lives. Andrea now lives with her husband Davyn and their two girls in Ireland.

In an effort to save Kaya’s vision, the family is calling on the public to take part in a #5kforkaya fundraiser walk to raise money for the medical costs and create awareness.

When: Saturday, 22 July

Where: Renishaw Forest, meeting at Renishaw Village Café

Time: 8.30am sign up


For more information, check out @amazing.kaya on Instagram and Amazing Kaya on Facebook.